Presenting Artist • Boston Museum of Science • April 18, 2026 • Rare New England
Recent Policy Projects:
Through Different Lenses
A Perception Framework Keynote Presentation - Status: Accepted
Perception, Communication, and Togetherness
An interactive, research-informed session exploring how stress, context, and lived experience shape communication in high-care environments. Through storytelling and visual reflection, participants learn to recognize “invisible lenses,” strengthen empathy, and navigate misunderstandings with clarity. Teams leave with practical tools to build trust and support children, families, and colleagues.
Rare Perceptions Project
A Perception Framework Exhibition - Status: Accepted
Rare Perceptions
Exploring how rare disease symptoms are filtered, misread, or dismissed through cultural and medical perception. The project has been accepted for exhibition at the Boston Museum of Science, for "Night at the Museum" by Rare New England.
Wearable Sculpture: Ball & Chain
Arts Connect 2025 Exhibition - Status: On Going
Ball & Chain Exhibition
A wearable sculpture confronting the unseen weight of chronic illness and disability. Using industrial chain, and personal narrative, the work makes systemic burden physically visible. Selected by Catamount Arts for exhibition.
Art & Advocacy Campaign: Ball & Chain
A Grassroots Coalition - Status: In Partnership with VCW & DRVT
Ball & Chain Campaign
A visual policy project in collaboration with Disability Rights Vermont & The Vermont Commission on Women exploring systemic weight, disability, and justice through wearable sculpture and public storytelling. DRVT & VCW partnerships are active, with other partnerships in development.
VCDR
2/11/2026
Rare Connections Project
A Perception Framework Exhibition - Status: In Development
National Institute of Health
2026
"Rare Diseases Are Not Rare" - NIH
Rare Connections
A visual and policy-based model illustrating how rare disease patients navigate a fragile web of healthcare, insurance, family, labor, and social systems. Each thread represents a dependency, one breaks, and the entire structure collapses. Submitted to the NIH Rare Diseases Are Not Rare Challenge as a systemic redesign concept for a secure care infrastructure.
Objectified Wearables: The Evidence Rack Project
A Perception Framework Exhibition - Status: In Development
In Partnership Development
2026
Social Media Campaign
Evidence Rack Campaign
A visual archive challenging the narratives placed on women’s bodies.
This installation displays the actual clothing worn during moments when women were objectified, harassed, or dismissed. Using chain hangers and artifacts as testimony, the campaign confronts how perception, not clothing, drives blame. Objectified Wearables transforms garments into evidence, reframing personal experience as policy-relevant data.
Access Check: Everyday Equity Project
A Perception Framework Exhibition - Status: In Development
In Partnership Development
2026
Social Media Campaign
Access Check Campaign
A micro-intervention exposing gaps in basic needs access.
This campaign uses mirror prompts and in-bathroom prompts to ask a simple question: “Do you have what you need?” By centering period supplies as a matter of dignity and public policy, not personal responsibility, Access Check: Cycle Care highlights how overlooked essentials reflect broader inefficiencies in care, equity, and everyday access.
Wearable Sculpture: Ball & Chain
Rare Artist Competition - Status: Finalist
Rare Artist
A wearable sculpture illustrating the invisible weight of rare disease and systemic barriers. Finalist recognition in the Rare Artist competition, transforming lived experience into visual advocacy.
Completed Project.
Our Partners & Selected Collaborators:
