Presenting Artist • Boston Museum of Science • April 18, 2026 • Rare New England
Awards
Named a 2026 Rare Disease Changemaker by Rare Diseases International
Recognizing her work advancing perception-driven approaches to advocacy, systems design, and equitable outcomes through projects like The Rare Perceptions Project.
About Haus of Van Eps
Haus of Van Eps is a multidisciplinary design and strategy studio exploring how perception shapes systems, environments, and lived experience.
Founded by Amanda Van Eps, the studio operates at the intersection of design, civic systems, and storytelling, developing frameworks and projects that translate complex human experiences into tangible, accessible forms.
Our Approach
At Haus of Van Eps, design is not just about aesthetics, it is a tool for alignment.
Our work centers on the belief that how people perceive systems directly influences how those systems function. Through an approach grounded in inclusive perception, we create spaces, experiences, and narratives that bridge gaps between individuals, institutions, and communities.
Our Work
The studio engages across multiple scales, including:
- Built environments and interior design rooted in sustainability and human-centered outcomes
- Public-facing installations and exhibits that explore perception, access, and systemic barriers
- Framework development that connects lived experience to policy, community design, and institutional strategy
Each project is designed to not only serve its immediate purpose, but to contribute to a broader understanding of how systems can become more aligned, inclusive, and effective.
About Amanda
Amanda Van Eps
is a Vermont-based systems-focused leader and storyteller shaping how communities align economic development, policy, and lived experience across complex civic ecosystems.
She is known for advancing perception-driven approaches to systems, policy, and community design using narrative, design, and strategy to translate lived experience into frameworks that improve alignment and outcomes across sectors.
She serves as Executive Director of the Killington-Pico Area Association (KPAA), where she leads regional collaboration and community-centered economic development in the Killington-Pico region. Her work includes developing the Visitor-to-Resident Engagement Model (VREM), a framework that reimagines tourism as a pathway to long-term community connection, local economic resilience, and sustained regional vitality.
Amanda also serves as a Commissioner with the Vermont Commission on Women and on the Rare Disease Legislative Advocates Advisory Committee with the EveryLife Foundation for Rare Diseases. In 2026, she was recognized as a Rare Disease Changemaker by Rare Diseases International for advancing advocacy and public awareness through perception-driven storytelling.
Through her design studio, Haus of Van Eps, she develops public-facing initiatives exploring how perception influences health, disability, and civic systems. Her Rare Perceptions Project, selected for exhibition at the Museum of Science in Boston as part of Rare New England’s 2026 fundraiser, examines how narrative and visual frameworks shape diagnosis, policy, and community understanding. Her work with Disability Rights Vermont includes the Ball & Chain campaign, an arts-based initiative highlighting systemic barriers through lived-experience narratives.
Across her work, Amanda operates at the intersection of economic development, policy, advocacy, and culture, building systems that are more aligned, inclusive, and capable of delivering better outcomes for the people they serve.
