Presenting Artist • Boston Museum of Science • April 18, 2026 • Rare New England

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Launched 12/3/25 - International Day of Persons with Disabilities

Launched 12/3/25 - International Day of Persons with Disabilities

Launched 12/3/25 - International Day of Persons with Disabilities

Launched 12/3/25 - International Day of Persons with Disabilities

Launched 12/3/25 - International Day of Persons with Disabilities

Launched 12/3/25 - International Day of Persons with Disabilities

Campaign Gallery

Art & Advocacy: Ball & Chain

Art & Advocacy for the International Day of Persons with Disabilities

 

The Ball & Chain Campaign is a collaborative art and advocacy project that transforms the invisible weight of chronic illness, disability, and diagnostic delay into a shared, visible symbol. Each participant’s “ball” is uniquely designed to represent the burdens they carry—delayed diagnosis, disbelief, medical gaslighting, economic strain, and the emotional cost of navigating systems that weren’t built with them in mind.


Created in partnership with the Vermont Commission on Women (VCW) and Disability Rights Vermont (DRVT), the campaign uses visual storytelling and lived experience to highlight a simple truth: the heaviest chains are the ones the public doesn’t see.


Through portraiture, narrative prompts, and community participation, the project reframes disability awareness as a systems-level issue of perception, communication, and policy. The campaign invites viewers to reflect on what burdens become “normalized,” who is asked to carry them, and how collective understanding can become the key that sets people free.

Meet the Designer behind Haus of Van Eps

Artist Statement

Artist Statement

Artist Statement

Artist Statement

Artist Statement

The Ball & Chain Campaign is part of a larger perception inquiry. By materializing invisible burdens as sculptural objects, objects that must be held, carried, or confronted, I invite audiences to see what is usually overlooked or dismissed. The work is not about spectacle; it is about recognition. It asks: What weights do we expect people to carry quietly? What would change if we saw their full reality? 

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